Otherwise- I am on the mend. I have reconnected with old friends and I am working on making new ones. I am a very private person who can alternatively be a too public person. Go figure. If you really know me, you know why. For now, I would like to say a prayer of praise for the docs ad coordinators at Duke. They are the best.
Monday, April 2, 2012
Life is...well, it ain't easy.
I recently celebrated my 16th lung transplant anniversary. It has been a hard year. One of my medications went toxic, knocking me out of a job I intensely disliked anyway, forcing me to change a bunch of medications. I am now back to looking. March madness sucks when your transplant rebirthday is in the middle of it as well as your first and only born's birthday.
Thursday, July 14, 2011
Since 2005
Since 2005, when I got my degree in teaching children with visual impairments and blindness, I enjoyed my dream job with a dream team- Mike, Carolyn and William at GMS. There I taught the content for the "other 18 hours of the day"- life skills, social skills, enrichment trips, recreation including rock climbing and dance, technology, etc. All kids need this but "our" kids need direct instruction. So often parents of children with disabilities don't think to have expectations for their children such as setting the table, washing the dishes, preparing their own food or snack, making their own bed...even parents of non-disabled children frequently miss the boat on this one, leaving their child ill-prepared for the adult world.
I have drawn on my experience with both lung disease and bipolar. No one likes to be pitied. Everyone has value. Find the value in your life and pursue your dream. Look for the value in each person, let people know you see it, and they will flourish.
Thursday, October 29, 2009
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